I was 90 percent paralysed in dec,2007 by one in a million stoke, acute transverse mylitis and bound to a wheel chair. I am commited to helping others
Lionel was only in first standard of school in dec2007 when I was terribly paralysed, only my fingers recovered and now able to bring you updates, I am now widely read and have millions of followers, thanks for helping me to keep lionel smiling
ANTHONY MELVIN CRASTO
Mobile Number +919323115463 INDIA
Email ID firstname.lastname@example.org
12:56 (1 hour ago)
|3 RD MARCH 2018||
|14 Mar (2 days ago)2018|
I am sorry to hear from your website that you are suffering from transverse myelitis and I wish you well.
The reason for my visit to your website is that I am looking for a source of VX-659, the next generation of CF treatment, which is to be used in combination with VX-770 (ivacaftor) and VX-661 (tezacaftor), the synthesis of which you have very expertly detailed.
Do you think it is possible to manufacture VX-659?
With very best regards,
|17:53 (15 hours ago)
aug 4 2018
Dear Dr Crasto,
I have been following and reading your websites for quite a while, and before I come to my main reason of writing, would like to express my admiration for your activities, and for your approach to cope with your physical condition. Thank you!
It is also an incredibly nice move of you to make your wide knowledge on medical chemistry available to the many. I am very grateful for that, and no doubt you thus help many thousands of people.
Now to my reason for writing: I am trying to find out more about EPI-743, i.e. Vatiquinone, and its production. I hope you do not mind if I ask you a few questions on it:
- Do you know, or where can I find out, whether Vatiquinone is a patented substance in Europe?
- What do you know about the process of manufacturing the substance oneself in the lab? Is this a complex or difficult process?
In case you wonder why I am asking – our family is affected by a type of mitochondrial disease which may well profit from EPI-743 (according to published studies), yet the substance itself is, currently at least, inaccessible and there are no clinical trials running at the moment. As we are engaged in a race against time, literally, I thus wonder about other ways to get access to Vatiquinone, especially given its relative excellent profile when it comes to side effects, etc.
I am very much looking forward to hearing from you –
Best, Alexander Batthyany
Dr. Alexander Batthyany
Prinz Eugenstr. 18
WILL BE ADDED……..